That’s Not Me Talking

Maria I. MorganBlog Archive

Several years ago, I had the privilege of meeting Susan Starnes at a Christian Writer’s Group in north Georgia. Although the group no longer meets, Susan and I have continued to stay in contact.

I admire Susan for so many reasons. She is a faithful prayer warrior. She’s been through some extremely trying times with both her mother and mother-in-law. She’s a real-life example of what it means to be the hands and feet of Jesus.

Pour yourself a cup of coffee and join me in welcoming Susan Starnes as she shares on the challenging subject of being a care-giver to a loved one with a chronic illness.

That’s Not Me Talking

Guest Post By Susan Starnes


Ever felt moody, and ‘out of sorts’ – not really like ‘you’?  I’m sure many Alzheimer’s Disease (AD) sufferers can relate.

According to the Alzheimer’s Association: “Experts estimate that up to 40 percent of people with AD suffer from significant depression.” Also, individuals with AD may experience and display ‘anger, aggression, and stubbornness’.  Why?  Once again from the Alzheimer’s Association, “The main cause of behavioral symptoms associated with dementia is the progressive deterioration of brain cells…” 

Preparation for what was to come


Soon after my mother had been diagnosed with AD, she tried to prepare me for what she knew was ahead.  How did she know?  Unfortunately, she had watched her grandfather go through AD.  She knew… all too well.

“This disease . . . ” mom said, shaking her head knowingly, “I’m . . . I’m probably going to say some things that are, well – they’re just not nice.”

I heard my mother’s words clearly, and yet I was puzzled by them.  Mom knew about AD but I knew very little, other than what I’d seen on TV which was basically a few humorous clips of some harmlessly amusing, forgetful old folks.  

“Just remember, that is not me talking,” mom shook her head in disgust. “That is the disease.”

Living the Reality


Though I didn’t understand those words, they had been spoken with such intensity that I never forgot them.  My mother lived for 12 years after her diagnosis, and during that time I came to fully understand what those words meant. You see my real mother, the mother she had been before AD gradually destroyed her brain, had tried to live by the old adage, “If you can’t say something nice, don’t say anything at all!”

So when the extreme stubbornness came, coupled with the illogical, and unreasonable behavior of AD, it was nearly inevitable that anger and some not-so-nice things would occur unless one of us took a b-i-g step back.  

My mother’s gerontologist gave me some essential advice for caregiving, “Don’t try to reason with her – AD has eaten away her mind’s ability to reason.  2 + 2 will never equal 4 with her – no matter how well you explain it.” 

In other words, your AD loved one is not fully responsible for her thoughts, words, or actions any more. 

However, we caregivers are

The caregiver’s role


I understand completely how unfair that is. Your mom insists she doesn’t need that medicine and refuses to take it again and again. Tempers begin to flare up. You’re irritated because you’re just trying to do what’s best for her.

You have sacrificed a lot to be there for her, and there are so many other things demanding your time – there is never enough of it. But instead of mom being cooperative and grateful, you’re facing her anger and resistance at nearly every turn. A five-minute job frequently requires fifteen.

On the other hand, your mother is irritated because she has completely lost control of her mind and her life. She is no longer allowed to drive. Where she lives, when and what she eats, and where she can go is all determined by her caregiver. 

The problem is that AD people rarely recognize their own incompetency because they forget how much they forget: couple that with an inability to reason and resistance is bound to occur.

How to respond


Praying is a good response to that situation, but there’s more.  

2 Corinthians 10:5b is a key verse in overcoming.

. . . bringing into captivity every thought to the obedience of Christ.2 Cor 10:5b

We caregivers must be intentional, striving to reign in our thoughts.  Don’t give yourself permission to dwell on the frustration of the situation, even though you know it’s going to happen again and again!  

Consider your loved one’s declining mental state, and graciously make allowances:

Ask God to help you find support, and alternative approaches to her care

Take advantage of all the information regarding AD

Join an AD support group

Ask God to help you remember, and dwell on, your real mom – the mom she used to be before AD took over her brain


Choose to think on the right things:

Finally, brethren, whatsoever things are true, whatsoever things are honest, whatsoever things are just, whatsoever things are pure, whatsoever things are lovely, whatsoever things are of good report; if there be any virtue, and if there be any praise, think on these things.Philippians 4:8 (underline added)

Had your AD-loved one known what was coming, I bet she would have said exactly what mine did: “Just remember, that is not me talking, that is the disease.”


Meet Susan


Susan Starnes is the mother of two grown children. She helped take care of her mother for several years after she had been diagnosed with Alzheimer’s disease. Years later, her mother-in-law was also stricken with dementia, and Susan and her husband moved her in with them, where they cared for her for several years before her passing. Susan currently ministers with some friends at an assisted living facility in Georgia.